APASCIDE  - ASOCIACIÓN ESPAÑOLA DE PADRES DE SORDOCIEGOS DE ESPAÑA APASCIDE

 
RECURSOS POR PAIS / COUNTRY'S RESOURCES :
DbI is the world association promoting services for deafblind people.
WFDB Federacion Mundial de Sordociegos.
EDbN Red Europea de Sordoceguera.
Listas de distribución de correo / Listserv's.
Lista de distribución de Correo sobre Sordoceguera en Castellano.
Quinta Conferencia Europea sobre Sordoceguera. 24-29 de julio del 2001.
VII Conferencia Mundial Helen Keller y I Asamblea General de la WFDB. 7-12 de Octubre del 2001.
13ava Conferencia Mundial sobre Sordoceguera. 5 al 10 de agosto de 2003. Canadá
America Latina.
Argentina.
Australia.
Bolivia.
Brasil.
Canada.
Chile.
Colombia.
Costa Rica.
Cuba.
Denmark.
Ecuador.
Germany.
Guatemala.
Honduras.
Israel.
New Zealand
Nicaragua.
Norway.
Perú
Portugal.

República Domínicana.
Scotland.
Spain.
Sweden.

United Kingdom.
United States of America.
Uruguay.
Venezuela.

 
LISTA DE RECURSOS / RESOURCES LIST:
POSCAL. América Látina Programa para la Creación de Asociaciones de Sordociegos en América Latina.
DBI World DbI is the world association promoting services for deafblind people.
WFDB World Federacion Mundial de Sordociegos.
A.A.R.P. España Asociacion Asturiana de Retinosis Pigmentaria.
AICE España Asociación de Implantados Cocleares de España.
APANSCE España Associació de pares de nens sords de Catalunya.
España Asociacion Cultural de Sordos de Palma de Mallorca.
U.Deusto España Cátedra de Ocio y Minusvalías.ocio@ocio.deusto.es
LLESIG Catalunya Centre d'Ensenyament de la Llengua de Signes Catalana.
Bruc 13, 2º de Barcelona. Teléfono: 93 3180489
FESOCA Catalunya Federació de sords de Catalunya.
FSC Catalunya Escola Fundosa de Catalunya para potenciar la inserción de las personas con discapacidad.
ONCE España Organización Nacional de ciegos españoles
Torre Jussana Catalunya Agència municipal de serveis per a les Associacions de Barcelona.
  España Asociación Nacional del Síndrome de Wolfram.
  Argentina Asociacion de Padres de Personas con Sordoceguera de la Republica Argentina.
La Rabida 2550 - San Isidro, (1643) Buenos Aires Tel: 01 747 5444 Fax: 01 318 0241
  Argentina Instituto Helen Keller 
Av. Velez Sarsfield 2100, Ciudad Universitaria, 5000 Cordoba 
Institución Fátima Argentina Centro Educativo Terapéutico Especializado en Sordo Ceguera.
LA RABIDA 2688. BECCAR. TE/FAX : 4723-3444.
inst_fatima@cuidad.com.ar
FUNDAL Guatemala Centro Educativo Para Niños con Sordoceguera de Guatemala.
SOCIEVEN, A.C. Venezuela Sordociegos de Venezuela.
FSDB Sweden. Föreningen Sveriges Dövblinda . - Swedish Deaf-Blind Organization - This site is in Swedish only.
SSC Scotland. Scottish Sensory Centre
NSTC Denmark. Nordic Staff Training Centre for Deafblind Services. nud@inet.uni-c.dk
Phone: +45 98 84 34 99 ; Fax: +45 98 84 34 88 ;
Nordic Staff Training Centre for Deafblind Services, Slotsgade 8, DK- 9330, Dronninglund, Denmark
sentralteamet Norway. Norwegian Central Team for the Deafblind.
  Portugal. XII Deafblind International (DBI) World Conference (Lisbon, Portugal). July 20-25 1999. - The Scientific Committee have decided to chosen the following main theme for the conference: "Developing Through Relationships: Celebrating Achievement."
weizmann Israel. Center for Deaf-Blind Persons - Beth David Institute - Tel Aviv, ISRAEL.
TAUBBLIND Germany. TAUBBLIND in den Selbsthilfe.Seiten
EDBN Germany. European Deafblind Network (EDbN), Leitseite.
  Canada. The Canadian Deaf-Blind and Rubella Association.
  Canada. Adaptive Technology Resource Centre at the University of Toronto
DBcent Denmark. The Information Center for Aquired Deafblindness
VCDBF Denmark. Videnscenter for Døvblindfødte
DBA Australia. The Australian DeafBlind Council
Charge Listserv Charge Mailing List (Listserv)
Deaf-Blind Listserv Deaf-Blind Mailing List (Listserv)
RPLIST Listserv Retinitis Pigmentosa Mailing List (Listserv)
Usher Listserv Usher's Syndrome Mailing List
SORDOCEGUERA Listserv Lista de distribución de correo sobre Sordoceguera (Castellano).
CHARGE Foundation USA CHARGE Syndrome Foundation, Inc.CHARGE Association refers to children with a specific set of birth defects.
hknctac USA The Helen Keller National Center Technical Assistance Center (HKNC-TAC)
NICHCY USA National Information Center for Children and Youth with Disabilities
perkins USA Perkins School for the Blind
osshe USA Teaching Research
TARP USA The Texas Association of Retinitis Pigmentosa, Inc., TARP is a nonprofit, 501 (c) (3) organization based in Texas.
TRACES USA TRACES
DB-LINK USA DB-LINK
NFADB USA National Family Association for Deaf-Blind
OSEP USA U.S. Department of Education, Office of Special Education, Severe Disabilities Branch
OSEP/DB-PROG USA U.S. Department of Education, Office of Special Education Programs, Severe Disabilities Branch, Services for Children with Deaf-Blindness Program
HEATH USA The National Clearinghouse on Postsecondary Education for Individuals with Disabilities

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Ecuador

Fundación Ecos y Luz. Fundación Ecuatoriana de Sordociegos.
Presidenta: Sonia Margarita Villacres
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Guatemala

FUNDAL. Centro Educativo Para Niños con Sordoceguera de Guatemala.
AGUASOR - Presidente: Adolfo Rene Perez
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Venezuela

SOCIEVEN, A.C. (Sordociegos de Venezuela). Es una Asociación Civil sin fines de lucro creada el 20 de enero de 1995 para impulsar acciones en beneficio de las personas sordociegas de Venezuela y sus familias.
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Perú.

ASOCIP. Asociación de Sordociegos de Perú.
      Presidente: Jose Llong Quiún.
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Colombia.

ACIS Asociacion Colombiana de Interpretes para Sordos y Sordociegos.
 
FENASCOL Federación Nacional de Sordos de Colombia. Contacto: María Rodríguez Plazas
 
SURCOE Asociacion Colombiana de Sordociegos.
Presidenta: Beatriz de Fuentes
 
INSOR Instituto Nacional para Sordos. 
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Sweden.

Föreningen Sveriges Dövblinda . - Swedish Deaf-Blind Organization - This site is in Swedish only.
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Scotland.

Scottish Sensory Centre - promotes and supports new developments and effective practices in the education of children and young people with sensory impairments ie visual, hearing or dual (deafblindness) sensory impairment.
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Denmark.

Nordic Staff Training Centre for Deafblind Services - Situated in Denmark, the Nordic Staff Training Centre is run by the Nordic Council of Ministers. They have literature in the Nordic languages and in english. E-mail address : nud@inet.uni-c.dk, Phone: +45 98 84 34 99 ; Fax: +45 98 84 34 88 ; Nordic Staff Training Centre for Deafblind Services, Slotsgade 8, DK- 9330, Dronninglund, Denmark
FDDB Foreningen af danske Dovblinde.
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Norway.

Norwegian Central Team for the Deafblind. - The Norwegian Central Team for the Deafblind is a state-run resource team distributing information on deafblindness.
Statens sentralteam for døvblinde.
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Portugal.

XII Deafblind International (DBI) World Conference (Lisbon, Portugal). July 20-25 1999. - The Scientific Committee have decided to chosen the following main theme for the conference: "Developing Through Relationships: Celebrating Achievement."
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Israel.

Center for Deaf-Blind Persons — Beth David Institute - Tel Aviv, ISRAEL.
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Germany.

TAUBBLIND in den Selbsthilfe.Seiten This site (all in German) is for families with children who are congenitally deafblind. Includes a link to the Newsletter of the Association of Families.
European Deafblind Network (EDbN), Leitseite.
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Canada.

The Canadian Deaf-Blind and Rubella Association.
Adaptive Technology Resource Centre at the University of Toronto
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Denmark.

The Information Center for Aquired Deafblindness — Videnscentret for Døvblindblevne er en selvstændig afdeling på Institutionen for Døve og finansieres af landets amtskommuner.
Videnscenter for Døvblindfødte— The National Research Center for Congenital Deafblindness is a nationwide center that gives service to families, public authorities, institutions and organisations, who have deafblind people or deafblindness as there target group.
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Australia.

The Australian DeafBlind Council was set up as a network for deafblind people or other interested people. The purpose of ADBC is to be a national council representing people who are deafblind, their support networks and organisations working in the field.
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New Zealand.

DeafBlind New Zealand DeafBlind New Zealand arose from the need seen in the NZ Foundation for the Blind, for a separate Society run by DeafBlind people themselves. We became an Incorporated Society in January 1989, and have gone from strength to strength. Some of our milestones. Our newsletter SEE HEAR keeps members up-to-date.
 VII Conferencia Mundial Helen Keller y I Asamblea General de la WFDB. 7-12 de Octubre del 2001.
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Listserv's.

Charge Mailing List (Listserv)
Deaf-Blind Mailing List (Listserv)
Retinitis Pigmentosa Mailing List (Listserv)
Usher's Syndrome Mailing List
Lista de distribución de correo sobre Sordoceguera (Castellano).
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United Kingdom

DEAFBLIND LINKMy name is James Gallagher and I am deafblind myself, This site was created to try and give some help to Blind, Deaf people, And especially Deafblind people.
A Deafblindness Web Resources Page. Very comprehensive
SENSE, The National Deafblind and Rubella Association. Founded as a parents' self-help group in 1955, Sense now serves people who were born deafblind or acquired deafblindness later in life.
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Charge's Syndrome Mailing List

The topic of this list is Charge's Syndrome. To subscribe to this list, send the following in the body of an e-mail message (leave the subject line blank):

subscribe CHARGE-L for your email address 

Send to majordomo@avenza.com

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Deaf-Blind Mailing List

The topic of this electronic list is Deaf-Blindness. The purpose of this list is to share information, inquiries, ideas and opinions on matters pertaining to Deaf-Blindness. This list is open to professionals, persons who are deaf-blind, and to their families and friends. To subscribe, send the following command: (leave subject line blank if possible):
SUBscribe DEAFBLND <firstname lastname>
Send to: listserv@tr.wou.edu

If any difficulties are encountered, contact listowner Randy Klumph

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Retinitis Pigmentosa Mailing List

The topic of this list is Retinitis Pigmentosa. To subscribe to this list, send the following in the subject of an e-mail message:

subscribe rplist (your first and last name)

Send to listserv@maelstrom.stjohns.edu

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Usher's Syndrome Mailing List

The topic of this list is Usher's Syndrome. To subscribe to this list, send the following in the body of an e-mail message (leave the subject line blank):

SUBSCRIBE USHER-LIST your email address 

Send to majordomo@farside.cc.misu.nodak.edu For more information about the Usher's list or for assistance, contact Kathy Anderson or Lynne Krumm

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Lista de distribución de correo sobre Sordoceguera (Castellano).

El tópico de la lista es la Sordoceguera.
Para subscribirse a la lista enviar un mensaje a: LISTSERV@LISTSERV.REDIRIS.ES y en el cuerpo del mensaje escribir: "subscribe SORDOCEGUERA nombre y apellidos" (sin comillas).
Si necesita más información sobre la lista SORDOCEGUERA o asistencia, contacte con Ricard López

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